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Chronic Hypersensitivity Pneumonitis (CHP) is a chronic interstitial lung disease that occurs after longstanding or recurrent exposure to an inhaled stimulus. This disease affects many patients in our pulmonary practice. We know from prior research that living with CHP has an impact on patients’ quality of life. We have recently designed a survey that asks questions that specifically address how CHP impacts patients’ lives. The purpose of this study is to validate the newly developed survey so that it may be used in the future to assess patients’ quality of life both in clinical practice and in research trials.
The study will involve two separate “study visits”. We will schedule you for the first study visit with one of our research team members. In this session we will ask you to complete the newly developed quality of life survey for CHP, as well as two other quality of life surveys and a brief demographics/medical history form. We will also be collecting Pulmonary Function Test and 6 Minute Walk Test results along with other medical history and demographic information. The entire initial visit should take on average 1 hour of your time. The second study visit will be scheduled for two weeks (+/- 3 days) after the initial visit. The purpose of this visit will be to have you complete the newly developed CHP survey (only this survey at this time) a second time. This session should take no more than 30 minutes.
During the COVID-19 pandemic, all study components will occur virtually via telephone or Zoom, email, and REDCap. Relevant medical information including the most recent Pulmonary Function Test results and 6-Minute Walk Test results will be taken from patient medical charts.
Inclusion Criteria
Exclusion Criteria