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Cirrhosis Quality Collaborative (CQC): A Collaborative Care Network for Adult Cirrhosis

Clinical Trial Details

This study is for men and women over 18 years of age who have been diagnosed with cirrhosis of the liver. 

The primary objective of this study is to develop a collaborative chronic care network capable of transforming care for patients with cirrhosis. The long-term goal is to improve the quality and cost-effectiveness of care for patients with cirrhosis across a diverse network of health systems in the United States. The study will compare practices at multiple sites across the United States of America, in order to improve the quality of care for patients with cirrhosis.

If an individual agrees to participate, the study coordinator will help the participant set up an online account in the secure patient portal. These accounts will be password-protected. Demographic data from the electronic health record (EHR) will be collected at time of subject enrollment and include age, gender, race/ethnicity, and insurance status. Patient-reported demographics will include self-reported education level and household income. Clinical data at baseline will be collected using electronic data extraction and manual data entry. Baseline data will include information about the subject’s liver disease. Clinical data that will be collected at baseline and updated every 6 months.

Participants will also be requested to answer 20 survey questions every 3 months. These 20 questions will take about 10 minutes, and must be done in one sitting. If at any time the participant feels uncomfortable, they may refuse to answer questions. 

Key Eligibility: 
  • Men and women who are 18 years of age and older
  • Have been diagnosed with cirrhosis

Detailed eligibility reviewed when you contact the study team.

Study contact by location

Upper East Side - Manhattan

Contact(s)

Mallory Ianelli, RN, BSN
(646) 962-4040
mai2016@med.cornell.edu

Primary Investigator(s)

Protocol ID(s)

Weill Cornell Medicine IRB #:

1906020320

Status

Open to Enrollment

Age Group

Adult