The purpose of this study is to evaluate a new type of patient-reported outcome tool that can be completed on an electronic device and will provide information about the quality of your life and health as it relates to your disease. We hope to learn about the natural history of congenital blood disorders and how they affect your life. 
    
This research study is being done because there is a need for improved understanding of quality of life in patients living with your condition, and we do not know which tools are best for determining this.