Joint Clinical Trials Office

Research Registry - Idiopathic Pulmonary Fibrosis Prospective Outcomes Registry (IPF-PRO)

Clinical Trial Details

The Idiopathic Pulmonary Fibrosis Prospective Outcomes Registry (IPF-PRO)  aims to:

  • Collect information regarding the natural history of IPF and healthcare interactions
  • Describe quality of life of IPF participants with patient reported questionnaires
  • Assess the methods of treatment of participants
  • Collect blood specimens for future research projects
Key Eligibility: 

Participants with a newly established diagnosis of IPF who are able to read and write in English, are 40 years or older, and are willing and able to provide informed consent may be eligible to participate.

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Study contact by location

Upper East Side - Manhattan

Contact(s)

Mei Wang
646 962 4363
mew2001@med.cornell.edu

Primary Investigator(s)

Robert J Kaner, MD  (UES)

Protocol ID(s)

Weill Cornell Medicine IRB #:

1502015917

Status

Open to Enrollment

Age Group

Adult

Disease

Lung Disease
Pulmonary Fibrosis